Richard Engel, who works as a international correspondent for NBC Information, misplaced his six-year-old son after a battle with Rett syndrome.
Henry Engel, the six-year-old son of NBC Information’ Richard Engel, has sadly succumbed to a uncommon, genetic mind dysfunction. Richard introduced Henry’s loss of life with a submit on Twitter on Aug. 18. “Our beloved son Henry handed away,” Richard wrote. “He had the softest blue eyes, a simple smile and a contagious giggle. We at all times surrounded him with love and he returned it and a lot extra.” The be aware was signed by Richard and his spouse, Mary, who he married in 2015.
Our beloved son Henry handed away. He had the softest blue eyes, a simple smile and a contagious giggle. We at all times surrounded him with love and he returned it, and a lot extra. Mary and Richard. https://t.co/M8LV8SHv6rpic.twitter.com/21Ja6TOtjH
— Richard Engel (@RichardEngel) August 18, 2022
Henry was born with Rett syndrome, which is an incurable mind dysfunction. In a second tweet, Richard added, “Researchers are making superb progress utilizing Henry’s cells to assist remedy Rett syndrome so others don’t should endure this horrible illness.”
The journalist additionally included a hyperlink to a memorial web page for Henry, which advised extra about his life and situation. The memorial web page revealed that Henry really handed away on Aug. 9, though Richard and Mary opted to maintain the information personal till now. It additionally shared Henry’s story, together with how his dad and mom observed he wasn’t reaching his developmental milestones as an toddler, which is what led them to start out getting him medically examined.
The web page defined that Rett syndrome is “a dysfunction that sometimes impacts women after their first birthday, robbing them of discovered expertise and leaving them with cognitive deficits, lack of speech and a wide range of different motor difficulties.” The web page additionally features a place for viewers to donate to analysis for this incurable sickness.
“Henry made the very best of each single day and labored tirelessly in his many bodily and developmental therapies,” the web page continued. “He continues to be an inspiration for Dr. Zoghbi and her group as they work to search out efficient remedies for Rett syndrome they usually already are making important progress with Henry’s personal cells.”